Happy Thanksgiving, folks. Hope you had a good one. I am glad to report that we had a very nice one here in Wisconsin, just the four of us plus Nona and Opa. We were happy to just hang around and enjoy a few days off together, livened up with trips to see Frozen II and the aquarium in Milwaukee.
We also took advantage of the long weekend to get the boys ready for being "Explorer of the Week" (Lemon) and "Child of the Week" (Lime) at their respective schools. What possessed me to sign them both up for these honors on the same week escapes me right now. In any event, we printed photos, decorated posters, gathered objects to show the classes, etc. I also am going to Lemon's class on Wednesday to give a presentation on genetics. I will steer clear of CF genetics, of course, and focus on more benign and funny traits like tongue rolling. Still, I suppose it's good to plant the seeds of understanding now, so that when Lemon and his peers are ready to learn more about CF, they'll have the basics down.
Papa Bear and I also watched a new documentary ("Love, Antosha) about Anton Yelchin, an actor who was killed in a tragic accident in 2016. What many people did not know about him was that he had CF. It's not a major focus of the movie, mainly because he kept it so private, but it is still amazing to look at the body of work he produced and know what he must have had going on in the background to sustain it all. One sort of amazing fact that I gleaned from the movie was that Anton's parents somehow managed to keep it a secret from him that he had CF until quite late in his childhood. I really don't understand how they managed that, given the need for so many doctor's appointments and therapies. I also have to wonder (it wasn't discussed at all in the movie) how Anton felt about finding out so many years on that his parents had kept such a secret from him. He was very close with both is parents, and there was nothing in the latter portion of the movie to suggest that the revelation of that secret had had a negative impact on the relationship, but I find that difficult to imagine.
Health-wise things are OK, I think. Lemon still has a little bit of a residual cough, but seems to have plenty of energy and is tolerating his full tube feeds (knock on wood!!!) so we may be OK for now. We actually have our next clinic visit coming up a week from Wednesday, so we can see if they have any new winter insights for us. In the meanwhile, we will just try to stay vigilant and hopefully but a bit of the lost weight back on so that we have some kind of buffer going into the heart of winter.
