Monday, April 29, 2019

Week 297: Off the hook

Serious question: have anyone else's kids completely lost their minds this past week? I don't know if it's the gradually warming temperatures, the random late-April snow, the lengthening days, or what, but these people have gone completely around the bend. Lime is quite a bit feistier than usual, protesting various things, demanding things, or insisting that things are wrong with the things he has, etc. Lemon, meanwhile, has a particularly severe case of whatever this spring madness is. His
normally low tolerance for frustration has evaporated completely, so things are getting thrown around the room at the slightest provocation, often accompanied by various forms of yelling or roaring. The highlight of all of this was perhaps Sunday at mid-day. Since I don't want the various forces of the internet to flag this post, let's just say the incident involved the living room floor and a rather large quantity of a liquid bodily waste product, which was expelled at such a trajectory that Lime required a bath and a complete change of clothes. 



Usually when Lemon goes through these little phases of, shall we say, increased volatility, it means that he is working on some new developmental milestone. I am just hoping that whatever this milestone is, it can be achieved quickly, before we have to resort to desperate measures such as having him live in the backyard.

Other than the various and sundry behavioral manifestations of spring, things have been going relatively well. Lemon is still not at what I would consider his respiratory baseline, although I think that is because we made a seamless transition from the last cold of the winter to the first allergies of spring. We brought out the air purifiers over the weekend, and we may restart allergy medication later this week if things get any worse. In light of him still not being quite where I want, we still have not gotten blood drawn for his liver labs. Honestly at this point I may just concede that we're not doing a separate blood draw and just wait until the big lab draw at our clinic visit in June. I don't know that two sets of labs 6 weeks apart will really add anything to clinical interpretation over just the one set in June, and if it's not going to add anything I really don't feel the need to put him through the trauma of an extra lab visit.

I guess I ended up taking a break from my series on the CF Foundation this week, but that doesn't mean I need to take a break from thanking everyone who has donated to our Great Strides team so far, and offer a friendly reminder to those of you who have been meaning to wander over to our fundraising page but haven't made it yet that you can get there by clicking right here!