Monday, March 25, 2019

Week 292: You're so classic

A momentous week: Lemon finally lost his first tooth! Well, second if you count the one he knocked out of his head when he was two. He is thrilled, and will now stick anything of the right shape into the gap in his teeth, including his enzyme pills, straws, pens, etc.

Speaking of sticking, it is spring break this week so of course I am hoping to get Lemon over to the hospital sometime this week to finally get those liver labs drawn. Not the most fun vacation activity, but I'm hoping it will be counterbalanced by all the fun stuff we are doing, including some sessions at art camp, a visit from Grandma and Grandpa, and dancing over and over again to his new favorite song, "Classic," by MKTO.









Lemon hasn't had any more episodes of anxiety about his growth in the past week, which is great. Seeing his growth chart really seems to have helped. We also got two comic books from the clinic about how enzymes work and why people with CF have to eat so much in order to gain weight. He is really interested in them and has asked us to read them to him over and over, so I hope he is learning something. They are kind of awful, honestly, but the information in them is accurate and if it's written in a way that resonates with him, it is worth suffering through them.

With spring in the air, a few things are getting going in the CF community. Coming up once again in May is the Great Strides fundraising walk. Our team is registered but I still need to update our website and whatnot, so watch this space for that. I also just found out that the Wisconsin CF advocacy day at the state capitol is coming up in a couple of weeks, so I just put my name in for that as well. And then it will be a mad rush to summer!