Monday, October 15, 2018

Week 269: Robot Stuck in Flower

We have just returned from Academic Success Night at Lemon's school, where we learned ways to support the teacher's efforts in the classroom in terms of teaching the kids to read. We learned that a) one of the kids who sits at Lemon's table at school is a girl, and b) like most girls, she appears to be a genius, in that she can draw a face with recognizable parts, and write her own name. We also learned about the book that the entire school is reading together, which is called The Wishing Tree. As part of reading that book, each kid was supposed to dictate a wish to their teacher, who wrote it on a strip of ribbon to be tied to a tree at school. Genius girl put down "To write." Lemon's wish, meanwhile, was "Robot stuck in flower." His teacher assures us that he is doing really well.

We also learned that we are supposed to be doing 20 minutes of reading per day with Lemon. So, our next big challenge is to somehow grow our day by 20 minutes. It may not sound like much time, but really, where is it going to come from? Lemon is only awake from 6am to 7pm, and he desperately needs all that sleep. He spends at least an hour every day doing therapy, and is at school from 8:30-3:30. And by the way, he doesn't really want to spend his time before dinner sitting still given that he's been cooped up in the classroom at school all day. It's a puzzle.

 On the health front, we finally decided that it was time for a round of Cayston. We were still hopeful late last week that we could avoid it, but then on Friday, after a few days of getting better, things started to get worse again. With Lemon being down 5 lb and coughing continuously for almost two weeks, we decided that it was time. Also, looking back over the past year or so, I can see that we end up doing a round of Cayston about every 3 months, and given that our last round was in June, we are about due. We started it on Sunday morning and I definitely feel like it was the right decision, the cough isn't gone yet but it's dried up almost completely and the threat of puking seems to have receded at least for now.

Of course, that brings us to our latest challenge, which is that Cayston is an antibiotic that has to be delivered using a special nebulizer, 3 times per day. We do once first thing in the morning, and once before dinner. And, once mid-day, of course, which is during school hours. So, I think the plan is that I am going to run over to the elementary school at lunch time and hustle Lemon off to a quiet spot somewhere to pump his lungs full of antibiotics, and then whisk myself and the equipment back home. Every day. For at least two weeks. Whatever it takes. At least the nebulizer is fast, and I knew what to write on my wish ribbon.