It looks like we will be having a white holiday season here in Madison, with 7" of fresh snow falling over the weekend. The kids were of course beside themselves with joy at this transformation of their world. Luckily the new boots I ordered (since when do I have children with feet this big?) arrived just in the nick of time. With only 4 days of school left until winter break, let's just say that spirits are high among the younger generation.
After weeks of watching Lemon's weight gradually tick downward, following our attempt at cutting back on the tube feeds, I decided we reached a point at which I was not comfortable going any lower, so we've added back DuoCal powder for now, to see if we can get things to stabilize. He is still eating more than he ever has before, but it is still clearly nowhere near enough to actually sustain him, and his intake didn't increase as much as I had hoped to fill the void left by the missing formula. Oh well. It was worth a shot.
We, like everyone else, are so excited about the great vaccine news, it really is starting to feel like there is a way out of this mess. We just need to continue to be patient, especially for the kids--it is sounding like a vaccine for them is still a bit of a ways off. Now I am wondering, will Lemon get Trikafta first, or the COVID-19 vaccine? No matter the order, I have high hopes for 2021!
