Another exciting update is that Lemon was invited to participate in new clinical research study where his lungs will be imaged by MRI. I of course said yes immediately when it was offered to us, partly because I always say yes to research if we can possibly do it, but because I am so convinced that better lung imaging and diagnostics are absolutely critical for CF care. X-ray just doesn't cut it. The doctor who recruited us in fact himself brought up how it was Lemon's participation in a previous study (involving a chest CT) that allowed us to catch the issue in his right lung back in the before times.
The most exciting aspect of this particular research project is that it has two parts. The first part is now. And the second part is later, after Lemon starts Trikafta! As in, it is such a given that he will get it soon that this whole research study is planned around that fact! The doctor said the approval might even come through by the end of this year. YOU GUYS! THE END OF THIS YEAR!!! Ok, the year in question is 2020, so I will try not to get my hopes up too much. But, YOU GUYS! THE END OF THIS YEAR!!!
Ahem. As I'd said last week, I'd been on the fence about taking Lemon in to the clinic for his appointments on Friday, due to the COVID situation in Wisconsin still being absolutely terrible. But, the doctor said he felt it would be safe for us to come, our county is in somewhat better shape than other parts of the state, and the hospital is of course being fanatical about infection control. I asked Lemon what he would prefer, and he said that he would prefer to go in person, since his doctor couldn't get the video conferencing to work well last time (true). So, between that and the fact that we need to be there in person to do the consent for this new research study, I guess we're going in. Honestly I think we are due for an in-person visit, it has been over 6 months since any medical person actually physically examined Lemon, a lifetime record for him.