The nights are long at this time of year, so you would think everyone would be well rested. I think every parent of a kid with CF will tell you that a good night's rest is hard to come by. Lemon had to give up his nap when he started kindergarten. Yes, he was still napping at age 5. My totally non-random sample of other CF parents is pretty consistent--kids with CF need a lot of sleep. Anyhow, since he gave up his nap, we now have to wake him up every morning so we can do everything we need to do in time to start our day, which kills me. And that's after 11 hours of sleep. Today, there was no school, so Lemon was home all afternoon with his brother and the babysitter. And of any possible activity he could have chosen, what did he pick? A 2-hour nap. As in he voluntarily walked to his room, lay down, and didn't come out for 2 hours.
Here is another unexpected source of sleep disruption: the kids decided this weekend that they wanted to rearrange their bedrooms. Both of their beds had been against one wall of their rooms, and we rotated them 90 degrees so they were against the other walls. Presto, a whole fresh look on life. One small issue, which we hadn't thought about when we made this change: Lemon's pole and formula pump were to his left in the old configuration, and are on his right in the new configuration. So, last night, his formula pump kept alarming because he was rolling over on top of the tubing and cutting of the flow, something that almost never happened in our old configuration. Luckily, the only person who is woken up by the alarm is me (loose definition of "luckily"). We're trying again tonight, so fingers crossed that even though the pump doesn't wake him up, maybe it reprograms his subconscious somehow so that he'll start rolling in the other direction.
At the bottom, in an area about the size of the surface of a matchbook, are some numbers that look like the numbers on our card. I think nothing of it, because I assume they're just reprinting the numbers on our card so that we know the letter was intended for us or something. Luckily, Papa Bear has a more suspicious mind than I do, so he got out our old card and discovered that the only discernible "improvement" in the copay plan is that we now have some totally different numbers than the ones we used to have, even though there was nothing in the letter to the effect of "Hey, guess what, here are your new and improved numbers that you will need to use to get your new and improved benefits!" Being the crafty sort, Papa Bear excised this matchbook-sized area from the letter and affixed it to our old copay card with tape so he will have it when inevitably we are denied our copay benefit because our numbers no longer match what the drug company will have on file. New and improved, I tell you.
