Monday, March 5, 2018

Week 237: Like a lion

At least we're getting a good start on the "like a lion" aspect of March, with several inches of snow on the ground and more continuing to fall as I write this. Lemon seems to have been inspired by this description of March, and is currently working something out. Who knows what. But whenever he is working something out, taking on the next developmental challenge or mastering the next skill, the first thing to go is eating. After so many good weeks in a row, stretches of consecutive days where he at maybe even hundreds of calories by mouth, we are back to the good old days of sitting down at the dinner table and declaring that we are not eating anything. Hooray for the familiar.


At least we've seen the other side of this now, and I can hope that, once Lemon has figured out whatever he's working on, we will get back to where we were, and maybe even move forward from there. We had food school today, which he enjoyed as always, although his food school teacher agreed with me that we're in a little bit of a regression right now. Even though it's only March, they're starting to work on their summer schedule and the schedule for next year. I took the forms. She thinks there are more things that could benefit him, maybe a group eating therapy session in the fall? I trust her judgement, and I also trust my own judgement that there is no way we can possibly manage the transition to full-day kindergarten, the transition to two school drop-offs and pick-ups every day, the daily burden of CF care, AND food school. Something's gotta give here. But what will it be? Instead of dwelling, let's focus on the fact that Lemon spontaneously (and correctly) used the verb "surround" today.

After a couple of pretty CF-intensive weeks, between the advocacy day and the clinic visit, it was nice to have CF take a relative back seat this week. Things will pick up again in that department in the coming few weeks, as I have a few more articles to write for the CF Foundation website, and a team web page to set up for our annual Great Strides walk (how can it be time for that again already)?

In other signs that it is March, Papa Bear's birthday was on Saturday. Cake decorations were selected by Lemon (blue) and Lime (white). As part of Papa Bear's birthday gift, I got everyone in the family a new Wisconsin Badgers T shirt. You will no doubt notice that there is no cute picture of all 4 of us in our shirts on this week's blog, mainly because someone (ahem, Lemon) detected that his new shirt was not in every way identical to his former Badgers shirt (now too small) and refused to wear the new one under any circumstances. Ah well.  Instead please enjoy this picture of a pair of what I'm pretty sure are sandhill cranes (thank you, Google) that flew over me as I was running this past weekend. They sure sounded like they thought spring was in the air!