Monday, July 13, 2015

Week 99: Well hello there!

It really doesn't get much more exciting than this week.  On Tuesday morning, Papa Bear and I sneaked in a quick breakfast date before our consultation with the OB at our perinatal clinic.  At our meeting with the doctor, we reviewed all the information we had about Lime, and the various risks and benefits of the different courses of action available.  The doctor's strong recommendation was that we deliver by 38 weeks 2 days at the most in order to maximize Lime's potential future growth and minimize the risks that he would be exposed to by continuing to grow in a sub-optimal uterine environment.  Even though I was still really nervous about an induced labor, the doctor seemed to have no doubt that this would be the best course of action for us, so we decided to go ahead.  We scheduled an appointment for 4pm on Thursday.

Wednesday and Thursday were both very weird days, since we knew that a huge change was right there on the horizon, but nothing had actually changed yet.  I had a lot of pangs of preemptive nostalgia for our time as a family of three, which has been really wonderful.  I started to get a little apprehensive about how I would handle having to divide my attention between two kids.  I packed a bag.  I mowed the lawn, and made one last grocery run to ensure that no one would starve to death while I was in the hospital.

On Thursday afternoon, I drove myself to the hospital, picking up Papa Bear at work along the way.  We checked in to the delivery floor, met with various members of the staff, and made a plan to start the induction with a gentle 12-hour treatment.  Once we'd made that decision, Papa Bear went home to take care of Lemon, and I settled in to spend a boring and uncomfortable night in the hospital by myself.  The worst part of the whole thing by far was that, because of the induction, Lime had to be continuously monitored.  Between him moving around and me moving around, the monitors kept losing him so every time I finally dosed off, a nurse would come in and have to wake me up to reposition them under a big elastic band on my stomach.

Not much changed between Thursday night and Friday morning, when Papa Bear came back to join me.  I started the first of two rounds of a 4-hour treatment.  Papa Bear worked away on his laptop in the delivery room, while I watched the Wimbledon semi-finals and paced around first our room and then the entire floor.  After the second 4-hour treatment, the midwife placed a catheter to help pave the way for Lime's exit.  Papa Bear went home to visit with Lemon for a while, so I read a book, paced around some more, and had dinner.  After dinner, when Papa Bear returned, the midwife and I agreed that it was finally time to start Pitocin, the medication that really induces contractions.  This was the part that I'd been dreading the most, but thanks to the very long preparation and extremely low dose that we used, I have to say the labor wasn't really any different than what I had with Lemon.  The major difference was at the very end--whereas Lemon took 3.5 hours of hard pushing to enter the world, Lime narrowly missed being delivered in the bathroom.  He was born at 11:45pm on Friday.

We recovered in the birth room for a while, and then went up to the maternity ward to stay for a few days.  That whole experience was pretty similar to what we had when Lemon was born--lots of people traipsing in and out of the room at all hours of the day and night, asking to see parts of you that total strangers don't usually ask to see, terrible food that's available al.  The only difference was that I spent much more of the time alone, since Papa Bear had to go back home to tend to Lemon.  We owe an absolutely tremendous debt of gratitude to Nona and Uncle Jared, who pitched in a huge amount of time to take care of Lemon during all this excitement.  We came home Sunday mid-day, and are working becoming a functional family of four.  More on that next week!




 

Monday, July 6, 2015

Week 98: Americana

This weekend, we attended our neighborhood's 4th of July parade.  It doesn't get much more "America" than this.
The parade was led by a fire truck--our local Engine 9 that Lemon and I have seen many (many) times, followed by a band comprised of anyone in our neighborhood with an instrument and the desire to participate.
 Tell me this baton-twirling lady isn't your hero!
 Most of the people in the parade were kids of various ages on their bikes, which they'd decorated with red, white, and blue streamers.
 The parade traveled a couple of blocks to our local park, where we got to take a look at the fire engine up close.
 The culmination of the festivities was a picnic and party, but by the time that all got started Lemon was so exhausted from the excitement that we had to go home for a 4 hour nap.
On Sunday night, Papa Bear and I completed our American experience (and also our annual soccer viewing requirements) by watching the World Cup final.  So, a very good weekend all around. 

This was also an amazing week for the CF community.  First and foremost, the FDA approved Orkambi, a two-drug combination that treats the root cause of CF in about 50% of patients.  We aren't in that 50%, but we are confident that our drugs are coming soon.  Our sincerest thanks as always to everyone who has donated to the CF Foundation on our behalf--your dollars make these breakthroughs possible!  Second, the results of the first gene therapy trial for CF were announced.  Basically the study found that delivering a normal copy of the gene that is mutated in CF patients directly to the lungs once a month for a year was able to slow the rate of decline in lung function in the treated patients as compared to the placebo-treated controls.  The results are certainly very encouraging, and hopefully will be even more dramatic once more efficient gene delivery technologies are used.  Yet another reason for us to end this week in a very hopeful mood!

Lime is continuing to tick along.  I'm heading towards 38 weeks pregnant at this point.  Lime has continued to pass all of his tests with flying colors, and we're starting to get a little bit serious about the logistics of his birth.  For instance, I have sitting next to me right now an empty tote bag that I fully intend to pack with things to take to the hospital...