Monday, December 28, 2020

Week 384: To the teeth

 I hope all of you are having a safe and happy holiday week. We are hunkered down here in our little corner of Madison, but just because we are hunkering doesn't mean we aren't having fun. The kids, for example, are pretty much having the time of their lives thanks to the generosity of everyone who gave them stuff this year. The number of things I have assembled from tiny individual plastic parts over the past few days is sort of mind-boggling. Also, my house seems to be littered with an absurd number of holiday-colored Hershey's Kisses wrappers. And, Lime managed to lose his first tooth on Christmas Day, while "secretly" consuming said Hershey's Kisses. But, did I mention the kids are happy? They are happy. And when you get down to it, that is what matters.

It is hard to believe that we have made it to this moment, the very last few days of the year 2020. What a year it has been. In stark contrast to what has been going on all around him, this has probably been the healthiest year of Lemon's life. He's grown tremendously, hasn't been sick a day since April, and has been able to almost forget that he isn't quite like everyone else. Being home all the time suits him just fine, he continues to be, in his favorite babysitters words, a "house cat." He likes being in his comfortable, familiar surroundings with all his stuff, and even now when leaving the property is a rare treat, he almost always asks if he can just stay home instead.

I am not sure what to expect from 2021, and perhaps it is best to just set expectations to a minimum and see what happens from there. I am still hoping that within the next few months, Trikafta will be approved for Lemon's age group, and then this state of health will just become his new normal. On the other hand, I am concerned that there most likely will not be a COVID vaccine for kids his age by the time fall comes around again, and we will be faced with some really difficult decisions about whether either of our kids goes back to school, or if not, what the alternate plan will be. 

But, all that lies in the future. For now, I just want to wish all of you loyal readers a happy new year. It feels good to bid 2020 farewell, and I hope to see all of you next year!